TOP IDEAS FROM A MUM CARING FOR A CHILD WITH LYMPHEDEMA

Infants, Babies, Toddlers, Teens with Lymphedema, lymphedema chronic arthritis, pediatric lymphedema, debulking surgery children, arm and leg swelling in babies, daily care

Moderators: Birdwatcher, jenjay, Cassie, patoco, Senior Moderators

TOP IDEAS FROM A MUM CARING FOR A CHILD WITH LYMPHEDEMA

Postby patoco » Sat Jun 10, 2006 12:11 pm

SOME TOP IDEAS FROM A MUM CARING FOR A CHILD WITH LYMPHEDEMA

It's always going to be different for every child, but things that
have been helpful to us are:

1 Not being too cautious. It helps my son's confidence if he can do
the things his friends are doing, so let them take a few risks if you
can

2 Keeping skin in good condition. We Aqueous cream night and morning -
in the UK you can get a huge tub on prescription. You can also use
it to wash with if skin gets dry. We also put emollient in the bath

3 Going swimming - like a gentle all-over massage

4 Trampolining (for lower limb LE)

5 Using SLD (simple lymphatic drainage) between MLD sessions

6 Sharing info with your child's teacher/school. As well as knowing
what to do if your child gets hurt, teachers can help in other ways.
For instance, my son was worried about other kids looking
at/commenting on his big leg/support hosiery in PE. His teacher
explained to the whole class about LE and why he wears a stocking.
The other kids took it all on board and don't make an issue of it any
more

7 Doing things to make LE less of a bind and helping them feel a bit
more in control. Things like choosing own colour of stockings, having
a few hours without the stocking sometimes (maybe if they want to
stay in pyjamas in the morning at the weekend), choosing a favourite
story to take along to MLD, having time off school for MLD instead of
going after school, having a special day together when you go to the
clinic - like going to a film or having lunch out

THANKS SO MUCH CATHERINE ------IF THIS HAS HELPED
AND YOU WANT TO MEET AND TALK TO PARENTS LIVING LIKE YOU WITH CHILDREN WITH LYMPHEDEMA

PLEASE CLICK ON THE LINK BELOW

Children with Lymphedema

http://health.groups.yahoo.com/group/ch ... lymphedema

Lymphedema People

http://www.lymphedemapeople.com
User avatar
patoco
Site Admin
 
Posts: 2175
Joined: Thu Jun 08, 2006 9:07 pm

Return to Children and Lymphedema

Who is online

Users browsing this forum: No registered users and 2 guests


cron